Will make efforts for free treatment of kids with rare genetic disorder: Haryana minister Anil Vij
Tribune News Service
Ambala, September 18
Giving a ray of hope to the children suffering from spinal muscular atrophy (SMA) in the state, Home and Health Minister Anil Vij on Saturday said he would make efforts to provide free treatment to those suffering from the genetic disorder.
He said: “The medicine has been recently launched in India and I’ll make efforts that the children get free treatment for SMA in Haryana. If needed, a policy will also be prepared for the treatment of children affected with SMA.”
Vij said this after a few parents reached the Janta Darbar on Saturday, where he was listening to the complainants from across the state. The complainants sought immediate intervention to arrange access and affordability to treatment for SMA, a rare life-threatening neuromuscular genetic disorder. Parents claimed that there were around 19 children in the state, who needed to be treated for SMA.
Sushila Rana, mother of a 20-year-old boy from Naraingarh who came with her son on a wheelchair, said: “The medicine for SMA has been recently launched in the country but it is too expensive and we can’t afford. We have requested the minister to help us. He has assured that he will make efforts. It will be a big relief for people like us.”
People from Fatehabad, Karnal, Ambala, Sonepat, Yamunanagar, Kurukshetra, and Gurugram complained of molestation, forgery, encroachment, land grabbing, immigration and murder issues. Vij directed his personal assistants to mark the complaints to the officials concerned, asking them to examine, reprobe and resolve them.
After nearly two hours of the Janta Darbar, Vij came out of the room and personally collected the remaining complaints.
